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Alexandria needs hero’s alexandria s our small hero contagious smile keeps our spirit and hope going in searching for a Official Logo Chicago Bears Damn Right I Am A Bears Fan Now And Forever shirt cure for rett syndrome alexandria was diagnosed july 30th 2009 with rett syndrome a devastating genetic disorder that is not hereditary and happens primarily in girls it is so rare that it happens in 1 in 10 000 births alexandria has struggled in reaching all her milestones but around18 months when her development took a turn for the worse and she was not progressing the 2 or 3 words she knew to say could not be voiced anymore hand movements became hand wringing or were in her mouth she could no longer pick things up or feed herself she lost skills she used to have apraxia affects her physical movement although alexandria has rett syndrome she is a typical 7 year old girl who enjoys music dancing and laughing and loves to watch cartoons hanging out with her friends at church her aunt and uncle and her grandma and grandpa she cannot speak or use her hands purposely but she can hear and understand what you say alexandria knows more than she can say and thinks more than she can speak we know with intense therapy she will maintain and strengthen the skills she has fought so hard to regain the donations alexandria receives will help pay for her dolphin therapy in september since alexandria doesn’t have the ability to share her voice i’m here to share her story I am so proud thousands of others are here to share her story too your help is our hope please share this with others and keep her in your prayers if you have time please go to her go fund me page and share with alexandria your comments she would love to hear from you to donate please click here care cure joshua poulsen oif 100 disabled veteran to find more information about alexandria and rett syndrome please go to these two links alex is a over comer rett syndrome awareness alex’s story. My princess z wasn t messing around about getting outside today told her she better get as much as she can cause it maybe 20 below 0 tomorrow ️ daddyslilangel iaintrockingwitthatfacethoughshemadethough. First team debuts jean clair todibo and moussa wague laliga debuts riqui puig and jeison murillo huescabarça forçabarça
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